I have Cystic Fibrosis and I know I often get very ill and get infections because of it and do need help from my mother at those times. However, my mother is extremely over-protective and always has been. She literally loves to baby me and wait on me. She will make everything for me, do all my clothes for me, make my bed, food, etc.. She will want to do all my therapies and lay out all my medications for me. When I take a bath sometimes she just comes in and wants to wash my hair for me, even though I can do it myself. If I go out somewhere she calls like ten times. She likes to come in my room and lay next to me in my bed at night/sleep next to me because she’s afraid I’ll die in my sleep or something. I love my mother more than anything, she’s very loving, we’re close. She had me when she was only a teenager and has been a single mother to me…But she just wants to do everything for me and I feel its getting too much now because I’m a teenager and want to go to college soon and have my own life, but its like she doesn’t realize that. How can I get her to lay off a bit without hurting her feelings? When I tell her I can do something myself she does it anyway or says she can do it better than me. What should I do?

He’s had a terrible cough during his entire 2.5 years of life. He has been prescribed and is taking Claritin, Benadryl, Singulair, Zyrtec, Flovent, Albuterol, and Nexium. In the past he has had pulmicort and prednisone as well. His doctor’s say that since his symptoms are not being helped by these medications they have ruled out asthma, acid reflux and allergies. He goes in for a Barium swallow tomorrow morning and on Monday he has a Cystic Fibrosis sweat test.
Does anyone out there have any experience with anything like this? What could it be? We can’t let him run anymore because he’ll start coughing so hard his body shakes. Rescue inhalers don’t work….nothing helps.
Any help at all would be appreciated so much!!! Thank you.
Also, he has been diagnosed with viral pneumonia 4 times in the past 6 months. He is given antibiotics each time.

What is a normal day like for you? I know what it is like for the child, but I want to know what it is like for the parent.
Also, are there any medications your child takes to help relieve some of the symptoms?

Thanks a lot…this is for a project

My teenage daughter has Cystic Fibrosis. She plays the piano and violin very well and got into an orchestra for young people and the group is going to travel for a couple weeks overseas, to Europe (we live in America). My daughter gets sick a lot and we’ve had some scares with her in the past. I’m afraid she’s going to get an infection or not be on top of everything she has to do on a daily basis (the medications and treatments). I’m protective and although I’d like her to do this and I know how much she wants to go, but I’m afraid something will happen to her. Should I let her go and how can I make sure nothing will happen to her? Should I take time off work to go with her even though she would like to go on her own with the group?

My son’s fiancee has Cystic Fibrosis and she’s pregnant with their baby, she’s 21. I know she’s generally very weak/frail and takes a bunch of different medications, and nebulizers and digestive enzymes. I was just wondering if anyone is familar and knows if such medications could cause harm to an unborn baby? She’s also having a hard time keeping enough weight on.