Hello all, My 9 month old daughter has had severe wheezing problems since she was about 2 weeks old. She is on a nebulizer treatment every 2-3 hours,which suppose to be every 4 hours if needed. She has stomach problems which they thought was causing the prob well come to gind out thats not it. They have done all the allergy testing on her, tested her for Cystic Fibrosis which they were sure she had that and nothing. We are taking her to the ER at least once a week cuz she is having a hard time breathing but since her oxygen leverl isnt “low” enough they seem not to care. Xrays show “something” in her lungs every once in awhile. But once again it isnt always there so they dont seem to care. I am getting very frustrated. My daughter deserves to know how it feels to be able to breathe with out it being a chunky!!! ANy help will be greatly appreciated.

My twin sister has Cystic Fibrosis, (we’re fraternal twins, I don’t have the disease) she recently had a chest infection and was in the hospital but is now back home, we’re 16 and she’s always had so many problems with her lungs and digestive system. I myself have hardly ever been sick in my life. However, recently I’ve not been well and have developed bronchitis and have been feeling very sick overall. Is it a bad idea to be too close to her during this time? I help take care of her a lot but I don’t want to cause her to get another infection, she’s very prone to infection, what should I do?
(Although we’re in the same house so its kind of hard to avoid her)

Sarah is a 9-year-old girl with cystic fibrosis. She has developed pneumonia again, and the doctors want to try a new medication along with a new type of breathing therapy to help deliver oxygen to her lungs. The new therapy must be done in a large, new medical center Sarah has never been to. Her mother will be unable to come in the treatment room with her, but she will be allowed to accompany Sarah up until the department waiting room.

When someone has a respiratory disorder, it is necessary to have a nebulizer on hand at all times in the event that they have difficulty breathing. Nebulizers are devices that administer medication in the form of a mist that is inhaled into the lungs and is typically used for people with medical issues such as asthma or cystic fibrosis. For someone who needs this type of equipment, there are many options available.

Perhaps the most convenient is the compact compressor portable nebulizer. This unit only weighs twenty ounces, making it easy and convenient for anyone to keep on their person at all times. It comes with everything needed for treatment on the go, including a car adapter, AC adapter, additional filters and masks that can accommodate either an adult or a child.

The Aeromist Epic nebulizer is not as portable as other options, weighing four and a half pounds, but it is very durable. It has a piston style compressor that can administer treatments at 30-35 psi and 9 LPM. It also features a thermal protector to keep the unit from overheating, making it safe for use anywhere.

The Aeromist Mini nebulizer may not be small enough for someone to keep on them at all times, but it is a very convenient size for overnight travel. The unit weighs less than four pounds and has a convenient case for traveling. In addition to being convenient in size, it can also provide treatment in less time than other similar models.

Having difficulty breathing is not fun for anyone, but especially not for a child with a serious medical condition. The Kido’s Bear O2 Delivery System not only gives kids the treatment they need, but it does so in a package that they will enjoy. The adorable bear shaped model is compatible with all nebulizers and compressors and delivers aerosol medication at a stream of six to seven inches.

When someone needs a medical device on a regular basis, it is important that they have many options to choose from. Mini nebulizers are a great option for travel, and there are also models that weigh less than a pound and can be kept on hand at any time. For a child who has a breathing difficulty, it can be helpful to find a nebulizer that appeals to them so that they do not mind taking their medication. Regardless of the patient and their needs, they should have no problem finding a nebulizer to fit their requirements.

By: Clay R. Price

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My son has had lab work today for his failure to gain weight. He is 7 months old. One of the drs concerns was the possiblility he may have cystic fibrosis. Anyone have any children with this or know any of the symptoms other than slow weight gain. Any help would be appreciated. thanks in advance.
my son weighs 13 lbs
The drs have checked his lungs and have determined them to be clear, but he has always had a bit of a congested breathing sound. the dr did put him on a new formula similac alimentum

My 16 month old daughter had a sweat chloride test done and The number came back at 53. They say 40-60 is borderline. I was wondering if anyone out there had the same thing and what the outcome was. They are sending her to get more tests done on her lungs, but I am wondering if her number can still be high and not have cystic fibrosis. I am very scared I also have a 6 week old little girl and my 16 month has all the symptoms including the very salty taste to her skin. Can anyone tell me if this has happened to them and what advice they can offer me.

an inherited/ genetic disease that …..source http://www.cff.org/AboutCF/Faqs/#Who_gets_cystic_fibrosis?

Cystic fibrosis is an inherited disease that causes thick, sticky mucus to build up in the lungs and digestive tract. It is the most common type of chronic lung disease in children and young adults, and may result in early death

I am having a hard time breathing and seem to have attacks that come on all of a sudden. Also I t feels like something stuck in my lungs..I cannot remeber any signs when I was growing up. Is it possible to start showing signs of cystic fibrosis in my 30′s?

A couple of days ago, a guy I knew back in my hometown got a double lung transplant. He has cystic fibrosis. I know removiing the lungs takes away the bacteria but does it get rid of the disease?

I want to know if anyone has any experiences/knowledge here, such as how long do you have to be in the hospital after the surgery? What is the quality of life like after a double lung transplant? Will the I develop Cystic Fibrosis problems in the new lungs? I’m 17 and will have to have a douple lung transplant eventually because of my Cystic Fibrosis and poor lung function because of the disease. I’m nervous about it.