asked:

1. In order for a child to have cystic fibrosis, BOTH parents have to carry the gene? or can a child become infected if ony one parent is a carrier?

2. How can one be tested for cystic fibrosis? can both a women and man get tested for this?

Cystic fibrosis is the commonest inherited disorder in the UK. One in every 2500 babies is born with cystic fibrosis. One in twenty-five people carry the defective recessive gene. It affects more than 7500 babies, children and young adults in the UK. 14 year old Lauren Hutchins talks about living with the disorder.

My daughter will be two weeks old tomorrow. We got a call from the pediatrician today that her newborn screening tests came back and she needs to go having further screening to test for cystic fibrosis. Did anyone have to do this and have the tests come back negative that they don’t have it? Neither me or my husband have a family history of CF, so this was a surprise. I’m very worried and hoping it’s a false alarm.

Does anyone have a child with CF? What symptoms did they have as a newborn?

I did read about CF online, but am curious about what other people have experienced with their babies.

Thanks for any information you have.

Cystic fibrosis in newborns? Do you have a child with CF?
My daughter will be two weeks old tomorrow. We got a call from the pediatrician today that her newborn screening tests came back and she needs to go having further screening to test for cystic fibrosis. Did anyone have to do this and have the tests come back negative that they don’t have it? Neither me or my husband have a family history of CF, so this was a surprise. I’m very worried and hoping it’s a false alarm.

Does anyone have a child with CF? What symptoms did they have as a newborn?

I did read about CF online, but am curious about what other people have experienced with their babies.

Thanks for any information you have.