Is 9 Too Old to Start Cystic Fibrosis Treatment?
Question by amehi: Is 9 too old to start Cystic fibrosis treatment?
I was just told my son has CF, he is 9. He hasnt grown in 2 years. I just keep worrying. Dont know what to expect.
Top answer:
Answer by Grant64330
“The cornerstones of management are proactive treatment of airway infection, and encouragement of good nutrition and an active lifestyle. The treatment for cystic fibrosis continues throughout a patient’s life, and is aimed at maximizing organ function, and therefore quality of life. At best, current treatments delay the decline in organ function. Treatment typically occurs at specialist multidisciplinary centres, and is tailored to the individual, because of the wide variation in disease symptoms. Targets for therapy are the lungs, gastrointestinal tract (including insulin treatment and pancreatic enzyme supplements), the reproductive organs (including Assisted Reproductive Technology (ART)) and psychological support. In addition, therapies such as transplantation and gene therapy aim to cure some of the effects of cystic fibrosis. Gene therapy aims to introduce normal CFTR to airway….
I don’t really know what kind of treatment you are talking about, but ANY treatment is better than doing nothing…there is a good chance that, since your son has youth on his side, with treatment, he may live long enough that when they find a cure, they can treat him. Even if they don’t find a cure in the near future, treatment will still durastically improve his quality of life, and lifespan- the thing that matters most is that you are always there for him-Good luck to you
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Filed under: Cystic Fibrosis
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I know I answered your other Q, but I just have to say :definitely not! Your sons doctors should want to start him on cf treatment immediately. Adults and babies alike do treatments for cf. If you have it, you’ll never be too old for treatments. Treatments are extremely good for cf, and will do wonders for him. By treatments, I’m talking about the vest (that thing that shakes you and loosens the mucus), and breathing in hypertonic (salt water, basically) and numerous other inhalers, maybe. Also, antibiotics like pills, enzymes to digest properly, and special A, D, E and K vitamins. If he’s sick in the hospital, they might have him on an IV to get rid of that bacteria in the lungs.