How to Deal With Cistic Fibrosis?
Wednesday, April 21st, 2010 at
2:05 am
kart asked:
My son has this genetic disorder and I am having a hard time dealing with it. He’s almost five and I’ve never met another person with it and would really like to talk to someone who does
Tagged with: Cistic Fibrosis • Genetic Disorder • Met
Filed under: Cystic Fibrosis
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Oh sorry i wrote bk to this a while ago but i guess i didnt click submit ! Anyway I have cystic fibrosis ! I am 17 and also havea sis 26 anda bro 11!
Dont worrymate it aint that big a deal! BIG DEAL your son has cf!
You sound like a caring dad ! So anyway I dont give out email cos of a BAD experience! If you leave yours here then ill be sure to email u !
Goodluck and am hping tohear from u
I actually thought i wrote to this 3 hours ago lol
whats up? i have CF I’m(Tim) 38 years old was diagnosed at 4 months old. the best advice for dealing with a child with CF is to make sure he takes his meds and just let him be a kid. if you treat him like he is sick them he will never be able to have a normal life. they are making advances in the treatment of CF everyday