Cystic Fibrosis – My Story
Tuesday, January 26th, 2010 at
3:00 am
lilkate424 asked:
My name is Katy and I am 23 years old. I just wanted to spread awareness about CF. Many people have heard of the disease but don’t know exactly what it is about. Hoping that more awareness will lead to increased research and hopefully a cure in the near future!!
Tagged with: 23 Years • Cf • Cystic Fibrosis
Filed under: Cystic Fibrosis
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The good news is he dose not have cf!!! But we still have no answer on what is cause him to have poor health. Thank you for your reply and I wish you the best in your health and hope we can keep in touch . Even tho my son dose not have cf i still would like to continue to learn about it .
Amber–did your son test positive for CF? I am a 44-yr. old woman with CF–married, and in moderate health. My best advice if he has CF would be to be sure he learns early on to exercise, do therapy, and take his meds! Today’s kids have so much more potential for health than I or my friends experienced. Best wishes & be strong!
omg i have cf and i was agreeing with every thing u said and then u said ur team works at playland!!! my family donates every year and we usually go there. my dads band was once offered to play there. there name is “No Options” my dad is the drumer.
My 6 year old son and i are a waiting his sweet test, i am so scared!! Watching this video makes me feel better about his out come of having a positive test.
wow ur a **** dude if u only knew the pain they go through
I’m sorry about your sister
I hope she can get better!
my sister has cf and is on life support this video brings hope thank you so much’
oh they will =]
Had to sit through this in Bioligy with Butterworth today -.-
Thank you for explaining it to make me understand a little better…..
I am sorry for what all people with CF go through. I have a CF magnet on my car and will help with donations whever I can. I really do care about people with this decesase. I think its not fair for these people to have this while others complain about every day little things, I think they are very ungratfull and should appreciate life more. I pray for you everyday and I hope they will find a cure!
You’re pretty awesome
There are thousands of different strands of the faulty gene that gives you CF…some people hardly have any problems. I know someone who’s been in hospital twice in her whole life, she’s now 26 with a baby. I know someone who’s on oxygen all the time and in a wheelchair at 21 years old and frightfully thin, despite a feeding tube. A girl in a room next to mine last year died coz she wasn’t strong enough to fight an infection anymore. She was 31
Very nice video!
I don’t get it…. How do people die with CF? What is it that can kill them? Is it the infections that are not treated? If so, does that mean as long as you treat every single infection, that everything will be ok? I sure hope so! I have seen a video in the Mayo clinic website I belive and it said that people in their 80′s have CF…. So why does everybody say 37 years old? When those people in their 80′s have it? Stay strong everybody and do everything that you can….
great video!! Im 27 w/CF, “I am not dying because of CF, I have learned to live because of CF!”
you are fantastic,at that age ,you sound so grow up,as you said,even if you feel like to give up,never do it,fight allways…god bless you
Hey Katy and the rest of you in here with CF.
I don’t have CF but you have my support anyways. My relation with CF is of the more tragic sort even tho noone really close to me got it. I also know more then most people who don’t have it. All I can say is that it makes me proud as a humanist to see how strong you all are. For regular people it’s hard just getting up from bed in the morning, but they have no idé what’s really hard in life.
Take care you all, and I hope you have good lifes.
thank you Katy. My daughter is 20 and her fiance has CF. Your video brings great hope.
I am 11 And i Have CF!
And i am Standing Strong!
I Was Born With CF It is Hard But All i Do is Stay Strong And never give Up some times i feel like Giving Up But No No i am not I Cry Sometimes Saying Why Does Have To Be Us with CF!I Am 11 Years Old!But Guys I Am Going to Do Lemonade Stands Ask The Principal At School If We Can Do A fundraiser and Everything I am going to do tests with the hospital i will do what ever i can do to help Find A cure!Icare!
i have posted your video on face book, you are so much like my daughter, people should realise what you go through, and just like my daughter you are a hero and an inspiration xx
brave beautiful girl my daughter is 22 and has c.f. god bless you xxxxxxxx
I’m 25…I was JUST diagnosed with CF four days ago. I’ve already been to clinic, had tests up the wazoo, and learned so much. I am overwhelmed with information. I have studied CF for years as I planned on being a CF nurse anyways…So I knew all too well what the disease was and what it does…But here I am getting to sympathize with my patients in the most personal way…Their nurse HAS IT!
can u be fat and have cf
u look very nice to be honest! i got sfb and look little skinny, but u look nice! keep up the good work