Cystic Fibrosis Life Span?
Question by SharksRule567: Cystic Fibrosis Life Span?
Okay – so my cousin is one year older than me. She is 13. She has cystic fibrosis. Obviously medical treatments have come a long way. My mom (who is a doctor, but I don’t want to ask her this) said that if she was born in the 70′s/80′s she would have died at around twelve. Anyways, I love her so much. And I want to know how long she will be alive. Will she be able to grow old? Or will she die before 40? Please. I just want to know. (Now, one of my dreams is to find a cure for CF) Thank you.
She lives 2-3 hours away, so I love her twice as much, because I rarely get to see her.
Chosen answer:
Answer by hasse_john
Joel Wallach already did. It is a selenium deficiency.
If you know better then please let us know below.
Tagged with: cystic • fibrosis • life • Span
Filed under: Cystic Fibrosis
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It depends on if she continues to take medicine. If she continues then she can live to about 45 to 55. If she stops she would live until 16 or 17.
People with CF can live well into adulthood. My cousin has CF, and she just turned 30 yesterday (it’s actually very scary to think about..). Anyway, make sure your cousin is always eating healthy and exercising. It’s so important.
There is no way to accurately predict how long a person with cystic fibrosis will live, as many different factors affect a person’s health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases.
In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantage of starting specialized treatments that were not available even a decade ago.
Data from the CF Foundation Patient Registry, a tool that tracks health statistics from patients treated at CF Foundation-accredited care centers, shows that more than 45 percent of all people with CF in this country are 18 years or older. Also, the Foundation calculates the median predicted age of survival for people with CF. This number is based on a statistical method of using life table analyses developed by insurance companies to calculate trends in survival.
In 2008, the median predicted age of survival rose to 37.4 years, up from 32 in 2000. The median predicted age of survival is the age by which half of the current CF Patient Registry population would be expected to survive, given the ages of the patients in the registry and the distribution of deaths in 2008.
The steady rise of the median predicted age of survival suggests how improvements in treatment and care are advancing the lives of those with CF. In 1955, children with CF were not expected to live long enough to attend grade school. Today, thanks to continued Foundation-supported research and specialized care, an increasing number of people with cystic fibrosis are living into adulthood and leading healthier lives that include careers, marriage and families of their own.