Cystic Fibrosis Foundation Video Podcast: Frank Deford
Friday, August 27th, 2010 at
8:32 am
CysticFibrosisUSA asked:
The Cystic Fibrosis Foundation video podcasts present the stories of CF patients, families and volunteers. Frank Deford, sports commenter, noted author of “Alex: The Life of a Child” and CFF Chairman Emeritus, recalls how he came to realize his daughter Alex, who died of CF at age 8, was a true hero.
Tagged with: Cf Patients • Daughter Alex • Volunteers
Filed under: Cystic Fibrosis
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my sister died from cystic fibrosis and brother died too ur rite because they marked everyones life then people can mark in there whole life i miss and love them… i am tryin to raise money to
i have this book its sad and just found out two girls on this show have cystic fibrosis
I remember faintly watching the movie in the 80′s. It was so painful to watch and what got me was the scene at her death bed. I’m curious if its on Video but also not sure if I would watch it again. Very heartbreaking.
I read the book n high school and just reread it now (my mom had two copies of the book so I took one). . It’s such an emotional book and Alex was a wonderful girl through it all.
what does not kill us makes us STRONGER
oh my god!!! i watched this movie when i was 7 and i was cryyyiiing so much, my mother was so concerned that i was so young and crying about such a mature story. but the story just touched my heart, and im so pleased to see the dad and see that he is speaking out after all these years!!! aaww, what a terribe, terrible disease!
Thats a beautiful speech. My mum sometimes say that courage is blended in with my/the CF gene
i really hope that Obamas new lift on stem cell research will provide a cure or sustained maintainance program for all CF people…my sister died of CF
i loved the movie!!!!! we watched it in school a few days ago i felt so sorry for that little girl
that is a great book and i really started to thank about how much i am happy to be living
Where did you find the movie. It has been a long time since I have seen it and I would like to own it as well.
i first saw alex’s movie in child development in highschool about 8yrs ago. In an ironic twist thats how long it took me to find out how and where to get the movie. I wanted to get it for the memory of alex and also because I wanted to educate people on cf. The way that movie portrays alex is so sweet. I’ll bet she was sweeter. I wish I could have met her. I would have been about her age and I most certainly would have remembered her. Anyways we need to take out cf! I support u & the cff!!
My wife and I read Alex’s story in 1989. We wept as it broke our hearts. A year later our
daughter Hannah was diagnosed with CF. We were terrified at first but decided to fight. We were told Hannah would have trouble walking up stairs by age 14. Today at 18, she runs varsity cross country for a 6A high school. This would not be possible without the work of the CF Foundation. Thank you and God bless all of you for your support.
I remember the movie, the part that will always stick w/ me is when Alex is dying and she says to her parents ” which way do I go?”sooooooo sad!
The book will make you cry. She was such a sweet girl, and it was obvious how much he loved her and cared for. Absolutely breaks your heart.
That poor guy. I remember reading the book about her and wept. It was a very moving book. She achived more in eight years than alot of people achive in a lifetime.
OH MY GOD! Everytime I hear Elton John’s “Your Song”, I think about her too! I mean, EVERYTIME!
you can get the vhs free from the cf foundation, they do ask for a 10 dollar donation after you recieve the video to help defer costs.
I never ment Alex or her Dad, but I love her. She is my hero. I did an essay on her in 6th grade.xoxo
this is a great book. i read it as a kid then ordered it several years ago,.
We got the book in the mail when I was 10 years old probably from the CF Foundation wanting a donation. I read it and didn’t give too much thought to the disease. I recognized a few of the symptoms in myself but figured it was coincidence. A few years later when I was 17 and started to have problems, I actually was diagnosed with cystic fibrosis.
My daughter has the book. I had the movie on vhs when it aired the very first time but I have no idea where it is and my daughter has always wanted to see it. Someone said they’ll send it free if you order something?? What and where??
wow, i didn´t realize there were so many other people who saw and we impacted by that tv movie like i was. i was really little when i saw it but i remember it so clearly. i’ve read the book a lot of times too and think alex was an amazing person. we even played a make-believe game about her at recess. i´m going to look for the movie now on the website. thanks for saying where you found it. i´ve been looking for it forever!
Thanks! I ordered it and they sent the movie to me in like 2 days! Still cried!
I saw the movie “Alex the life of a child” when i was young i believe i was around 10. I felt so sad for her and her family. Im interested in finding the movie now.