Cystic Fibrosis Clinical Trials: A Child’s Experience
Tuesday, August 24th, 2010 at
11:27 am
CysticFibrosisUSA asked:
8-year-old Quinn Anlauf feels good about participating in a clinical trial
Tagged with: Clinical Trial • Clinical Trials • Cystic Fibrosis
Filed under: Cystic Fibrosis
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OH MY GOSH she is soooo cute
it helps loosen up the mucus stuck in our airways. and after the vest and breathing treatment we have to cough it out. and yes it is not so much fun.
I GOT THE SAME AS U AND IM UR AGE
hey im 15 with cf. i wish i could just be normal. even for just one day. please help find a cure. we go though so much, i coulnd’t wish this on my worst enemy. please us find cure.
I have cf. I am 12 years old and I want to find a cure…
I am sick of my medicines, pep mask, nebuliser and all the clinics I have to go to.
I don’t want to die so young.
Please help me…
It is really good for a CF patient, because the vest breaks up all the mucus caught in the lungs and allows them to breathe.
Yes it does help. Because it clears the mucas that the body can’t remove itself
i have CF too, i think a cure will be soon
I think if I had to wear that vibrating vest, it’d make me want to throw up from the shaking. In the long run, does the vest help? it seems like all that shaking wouldnt be too good for you.
And the primary cause is a single point mutation (F508) in the CFTR gene on Chromosome 7. Is this an adenovirus transfection to repair the affected cells in the lungs? My family has a history of this horrible genetic disease.
i have CF i want a cure..there are hard times
hopefully these trials will work n help cure my girlfriend