Cystic Fibrosis? Anyone Have It in Their Familiy?
Question by Proud Parent of 6: Cystic Fibrosis? Anyone have it in their familiy?
My neice was recently found to have Cystic Fibrosis. What can we expect? Do you know anyone with this condition? Is there a place I can donate money to help with a cure, treatment, and awarness?
The No 1 answer:
Answer by Alicia
Nobody in my family has it, but my father’s friend does. He is 45 years old, and had a double lung transplant last year.
Cystic fibrosis (also known as CF, mucoviscoidosis, or mucoviscidosis) is a hereditary disease that affects the exocrine (mucus) glands of the lungs, liver, pancreas, and intestines, causing progressive disability due to multisystem failure. In the United States, 1 in 3,900 children is born with CF. Some women have fertility difficulties due to thickened cervical mucus or malnutrition. In severe cases, malnutrition disrupts ovulation and causes amenorrhea. Several common antibiotics such as tobramycin and vancomycin can cause hearing loss or kidney problems with long-term use. In order to prevent these side-effects, the amount of antibiotics in the blood are routinely measured and adjusted accordingly. In most cases, CF causes an early death. Unfortunatley, the average life expectancy is around 36.8 years, although improvements in treatments mean a baby born today could expect to live longer. You could make a donation to the “Cystic Fibrosis Foundation.” So sorry for you neice and the best of luck to you and your family !
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Filed under: Cystic Fibrosis
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