Cystic Fibrosis
Tuesday, December 29th, 2009 at
6:06 am
Philanthropy1 asked:
Learn more about the #1 genetic killer of children and young adults in the United States, Cystic Fibrosis, and what you can do to help!
Tagged with: Cystic Fibrosis • United States • Young Adults
Filed under: Cystic Fibrosis
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thanks so much for this video. i am 13 and have cf. it is very difficult to deal with bless you all
Great Video…I love the song, My Wish, it was one of Siobhan’s (my niece) favorite songs. She passed from CF at age 27, June 24, 2008. We are still hoping, praying, and working for a cure. God Bless all who suffer from this disease.
This is too my beautiful Kelly. She unfortuantly suffured with Cystic Fibrosis, all her 18th life, you wouldn’t know how much pain she was in. She hid it all her life. She was deffinatly the prettiest girl by far, she smiled everyday knowing she had a short life too live, but she lived too the full. She was told she wouldn’t make it, but she was a hero and made extra months. She was able too celabrate her 18th. Rest in peace angel. Sleep tight, im always with you. I love you princess x
i’m 13 and have it!!
I have Cystic Fibrosis,
I’m 16 years old, i have 10 friends with CF
and 3 Best Friends with it.
Thank you so much for making this!
♥Marissa♥
Thank you for the information!! my nephew Nathan Contreras has CF…he is 4… you can see his video on my site…
I know this is super hard to deal with…plus huge medical bills!!!
Inspiring, we’ll find a cure.
this comment is really sweet. i am 13 and I have cf. stay strong! and one o f the most importatant things I have learned from cf is to live lie to the fulleset and always have fun, and try not to complain and just hang out and go places, and respect that your alive! just think- we are all lucky because 30 years ago ppl w/ cf rarely lived past two.
your comment touched me and you and your family, and your freind’s cousins will be in my prayers! god bless you
I love this video. It shows how it really is. I have CF, and im 11. Its hard trying to keep up with a social life and keep healthy. my mom is a single mom of 4 kids, NONE of which are ‘perfectly healthy’ i have CF, osteoperosis, diabetes, chronic sinusitis, and other things. my brother has severe asthma, and my sis and bro have ehlers downlose syndrom… my friends cousin died of cf at 18, and her other cousin still has it. i LOVE allie! she helps me through it all, and thats not easy to do!
Thank you for this video! My son is 10months old and is a carrier of cf but has had a serveraly weakend immuned system a simple cold keeps him sick for weeks and i still have no awnsers why! they say he should have any symptoms because hes just a “carrier” but he does
You’re right, Im 16, and when i feel sick, i dont look it. When I had lung infections i looked healthy, so a lot of kids thought I was lying.
Because of CF I had to have a double lung transplant, I got my transplant on August 7th, 2007. It’s been over a year, and everything has CHANGED, no more breathing treatments, no more worrying if my lungs were going to let me play volleyball at a HS game, now, i dont have to worry about all that now.
This was an eye opener, thank you.
Thanks for sharing!
Thank you for sharing this.
thanks for sharing, xx
thanks for sharing this.
Thanks for sharing with me.
Thank you for sharing this video it is very informative.
I have cf too and it is true. Many people dont think i have it because i look healthy…