Cystic Fibrosis
Saturday, January 23rd, 2010 at
10:06 pm
JLHarvey85 asked:
10 minute documentary final project about a day in the life of a ten year old girl with Cystic Fibrosis
Tagged with: Cystic Fibrosis • Old Girl
Filed under: Cystic Fibrosis
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I have CF didnt find out till i was 3years old. Now i am 17, CF stops me from doing more things than i would like but its life and im getting through it! I would not let my doctors give me the feeding tube tho, im in hospital 3times a year but i refuse to bring the pump home because i dont want my home feeling like a hospital bed. I am happy with my weight and i drink fat shakes to put the weight on…
My mother is 58 with CF. My family almost lost her 7 years back before we had the vest. The vest and meds have extended her life. You just can’t get as good of results from pounding on the back, as you can get with the vest.
The doc said she could not have children but she was able to have 2 and here i am. That was back in the 70′s so Im glad to be alive.
Keep fighting and live healthy. There are more and more people getting to their 60′s with CF.
i have CF i am 15 years old i survived the mexican flu (lucky me XD) and i freerun alot in my spare time and hang out with friends i would say do with your life what you want to do cause you might regret it later when you’re older that you didnt do it
ah well hope they will make a cure for CF in 10-20 years (or shorter) i would cry out in tears cause of the hapiness cause that would be a medical miracle ;3
i have cf and it was found out through a sweat test when i was 8 months now im 14 and have only had to go in 4 2 weeks 4 times and apart from little things am going strong! =)
I have cf too… I am twelve years old and have done everything I can to stay healthy and I am. I have luckily only been ammited to the hospital once so far. I am also lucky that I am very capable of gaining weight. I actually want to lose some. I am five foot and I luckily weigh 125 lbs. Good luck with life. Stay strong. Be active. Love life. Be happy. Marc
I give my respect to her and all those fighters out there. I wish you all the best!
This girl has a great outlook on life.. that is going to help her majorly.
My boyfriend has cf..I love him so much!!
man im not allowed to play sports because of my stupid cf =/
I lost like waaay to much weight and went to the hospital..again >>
wow i couldnt get a vest till last year =/ theyre sooo expensive!
good luck to her man
My daughter is 7 and has CF. she is the love of my life and i pray every night that we find a cure.
i have cf…
had it all my life… wish i could afford the vest..:)
but … be strong and positive little girl… life is hard ..but funny..:)
Thank you for an insightful look into the daily routine for a child with CF. My 8-week old daughter was diagnosed through an amnio at 17 weeks pregnant…we will begin breathing treatments this weekend and she’s been on enzyme’s since 2 weeks. I now have a better idea of my future and realize it’s totally ‘doable’ – thank you! Stay strong Devin!
i’m 18 and got cf…they’re working on a cure atm in my hospital and i’m really excited…i have really reactive airways and am usually really tight, so physio is a problem for me and so are all the mainstream nebs…so hopefully there’ll be some new stuff soon =]
she looks familiar where does she live, like city,state
hay, we are pretty normal but we go through more than the usual person. its so hard to understand wat we got through with out having it. i didnt get diagnosed till i was 4 and i dont know i lived that long becuz that is have the average lifetime of a cf child before they cam uo with vest treatments. there is something at childrens hospitals where they can simulate the feelings and give u the treatments.
i have cf and i do 5 nebulizers a day, 45 min treatments 2 times a day, and i take 36 pills on and average day. luckily i dont have a tube yet. I **** GETTING UP SO EARLY.
My god I can’t comprehend what you go through on a daily basis. The only way I can understand it is that I get strep throat sometimes (a virus stuck in my throat) when I travel or get the flu bug in winter and so I have to cough all the time to get that yucky mucus out. But other than that I don’t know how you get through it every day for the rest of your life.
I have cystic fibrosis, and I have to take 4 huge enzyme pills before each meal, do 2 nebulizer treatments every day (approx. 1 hour) and I eat like a horse and only weigh 100 pounds.
Stay strong, I am 13 years old, and I feel your pain.
my half brother just died friday from complications after a lung transplant for his cf.
3 year old sister is getting tested for CF next weed
. watching this to find some info
girl stay stronge don’t worry i have it to.
its tuff but u can make it
I found a website that sells colloidal silver really inexpensive. Its double the product for half of the price. Check it out sacredcolloidalsilver (.com) When your looking for the answer…it’s just a click away.
she was 15 and engaged
sorry to hear that man about what age was she if you dont mind answering
my step sister recently passed away because of this i want to find a cure so nobody has to feel what i feel:(