Any Social or Ethical Issues Associated With the Diagnosis, Treatment and Management of Cystic Fibrosis?
A question asked by Maddie L: Any social or ethical issues associated with the diagnosis, treatment and management of Cystic Fibrosis?
Most comprehensive answer:
Answer by Philipjfry
Well im pretty sure some people object to a bullet to the brain which is why they dont do it so the genes get passed on and EVERYBODY HAS IT ONE DAY AND ALIENS INVADE AND THEY TRY AND RUN AWAY AND RUN OUT OF BREATH AND GET EATEN BY ALIENS BECAUSE EVEN JOE CHIEF HAS CYSTIC FIBREOPTICS
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Tagged with: associated • cystic • Diagnosis • ethical • fibrosis • issues • management • social • treatment
Filed under: Cystic Fibrosis
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An ethical issue that comes to mind concerns treatment. CF patients require double lung transplants, a single lung transplant doesn’t work. So in an extreme situation, a transplant for one CF patient could mean two other patients with other lung diseases don’t get transplants yet. How would people set the criteria for who gets the transplant?–That’s a big question.
After you or someone you love receives a diagnosis of cystic fibrosis, you’re likely to experience many emotions, including anger, concern, guilt and fear. These issues are especially common in teens. All are normal responses. Talking openly about how you feel can help. It may also help to talk with others who are dealing with the same issues.
That might mean joining a support group for parents of children with cystic fibrosis. Older children with the disorder may want to join a cystic fibrosis group to meet and talk with others who have the disease. Psychologists are often an important part of the care team as the child approaches the teen years.
Support groups aren’t for everyone. But often members of these groups can share information,
experiences and solutions about the unique challenges associated with cystic fibrosis. If a support group isn’t available in your area, you might consider Cystic-L, an e-mail support group for people with cystic fibrosis. Or, you may want to talk with another family who is dealing with the disease. Learning how others meet certain challenges may help you find solutions that work for you.