Monday, May 31st, 2010 at
2:37 pm
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| Written by well-known experts in the clinical management of cystic fibrosis, this practical book is a complete guide to caring for the patient with cystic fibrosis. The authors offer pragmatic advice on every problem arising during the course of the disease--from treatment of symptoms to referral for lung and liver transplants. This volume is an essential reference for any health care provider treating persons with CF, including pediatricians, pulmonologists, internists, residents, nurses, respiratory therapists, and nutritionists |
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 Invaluable resource for CF Care Providers |
| Review Date: December 24, 2009 |
| Reviewer: Paul K. Nolan, Amarillo, TX |
I have kept copies of this excellent resource for residents who rotate through my Pediatric Pulmonology practice. Orenstein, Stern and Rosenstein write in a succinct and clear manner that gets the provider the information needed in care for those afflicted with CF. The book can be read in two weeks of evenings cover to cover. The system approach that they use is helpful and pragmatic. Though the book is dated in its publication, the recommendations that are made for the care and management of CF are still current. The added bonus is the price. Do not be dissuaded by the bargain basement price, the information authors provide for the care and management of CF is priceless. Whenever I get a new CF patient, I give a copy of this book to the primary care physician and I give a copy of the companion book Cystic Fibrosis: A Guide forPatient and Family http://www.amazon.com/Cystic-Fibrosis-Guide-Patient-Family/dp/0781741521/ref=pd_cp_b_2 to the patient. These books make the care and management of CF patients easy to understand and an achievable goal.
Paul K. Nolan, MD, FCCP, FAAP
Pediatric Pulmologist |
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Technorati Tags: care, cystic, fibrosis, medical
Sunday, May 30th, 2010 at
4:33 pm
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| Cystic Fibrosis: A Guide for Patient and Family |
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| Manufacturer: Lippincott Williams & Wilkins |
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| List Price: $49.95 |
| Sale Price: $9.74 |
| Availibility: Usually ships in 24 hours |
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| Univ. of Pittsburgh, PA. Text is designed specifically for patients with cystic fibrosis and their families. Explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. Includes new material on carrier testing, infection control, and more. Previous edition: c1997. Softcover. |
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A Definite "Must Read"
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| Review Date: March 9, 2000 |
| Reviewer: Jake Hathaway, SLC, UT |
| This book is an essential read for: Anyone who has a child with CF, anyone who has a friend with CF, anyone who has a sibling with CF, anyone who has a spouse with CF, anyone who has a parent with CF, anyone who works with people with CF. In short, if you have any contact at all with someone with CF, this book can help educate you. I have had CF for 25 yrs now, and I learned more than a few things. |
I have read every bit of material on CF this book has it all
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| Review Date: February 4, 1999 |
| Reviewer: , |
| Since my daughter was diagnosed 11 years ago with CF I have searched for any bit of material of this disease I could find. What I did find was bits and pieces that did not cover all the aspects of CF. This book leaves nothing out. I have shared it with my whole family. |
Knowledge is power!
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| Review Date: August 22, 2000 |
| Reviewer: The Petersons, Portland, Oregon |
| My daughter was just diagnosed with CF. The pulmonary specialist gave me a copy of this book and I couldn't put it down. It is certainly a valuable reference tool in how to best combat this condition. We only hope a third edition will be put into print soon so as to update all of us on the constantly changing advances made in the field. Buy this book and keep it accessible, you will need it! |
Invaluable resource for parents of children with CF
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| Review Date: September 27, 1998 |
| Reviewer: , |
| This book is a must-read for all parents that have children who are diagnosed with Cystic Fibrosis. It answers many questions before you even know how to ask them! It explains what is going on in the body in terms that anyone can understand. Reading this book helped me to understand what the doctors were telling me at one of our appointments. I highly recommend it. |
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Technorati Tags: cystic, family, fibrosis, guide, patient
Sunday, May 30th, 2010 at
7:12 am
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| Kyle's First Crush |
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| Manufacturer: AuthorHouse |
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| List Price: $19.99 |
| Sale Price: $8.99 |
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| Kyle falls in love for the first time in Miss Irene's Pre-K Class. Ashley is a very special girl who melts his heart. With some help from his mom, he finally tells Ashley Elizabeth how he feels about her. You will enjoy this very endearing and uplifting love story. |
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Technorati Tags: crush, first, kyles
Saturday, May 29th, 2010 at
8:40 am
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| The Spirit of Lo : An Ordinary Family's Extraordinary Journey |
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| Manufacturer: Mind Matters |
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| List Price: $14.95 |
| Sale Price: $1.96 |
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| An ordinary family is faced with an extraordinary challenge, a child with cystic fibrosis. This is their story, rich and moving, as they laugh and cry and learn and grow. Their love, faith, and commitment to each other carry them through battles with depression, anger, despair, and the ravages of the disease as they join a race with death for a cure. What emerges is THE SPIRIT OF LO, which enables the family and their community to face each new day of life's dance on the edge of mortality. |
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Technorati Tags: extraordinary, familys, journey, ordinary, spirit
Friday, May 28th, 2010 at
6:48 pm
Technorati Tags: death, part, till
Friday, May 28th, 2010 at
5:18 am
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| The Power of Two: A Twin Triumph over Cystic Fibrosis |
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| Manufacturer: University of Missouri Press |
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| List Price: $29.95 |
| Sale Price: $15.99 |
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| The tragedy of cystic fibrosis has been touchingly recounted before, but this is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their struggle to pursue normal lives while grappling with the realization that they might die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins bicultural heritage Japanese and German influenced the way they coped. The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. These two remarkable sisters have much to teach about the power of perseverance and about the ultimate power of hope. |
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Technorati Tags: cystic, fibrosis, over, power, triumph, twin
Thursday, May 27th, 2010 at
4:17 pm
Mei asked:
whereas today it is currently 38.4, and rapidly extending. So life expectency is 38 times more in about 50 years.
In which years was the biggest jump in life expentancy and what medical development was primarly the cause of this jump?
What i mean is, was there some treatment that was invented that all of sudden made L.E. for CF 10 times what it was, and when did this happen?
Technorati Tags: Cf, Cystic Fibrosis, Life Expectency
Thursday, May 27th, 2010 at
3:07 am
jehsk08 asked:
On Jun 23rd my 4yr old son had to put in the hospital due to an accute pancreatitis attack. He has been home for 2 weeks and still has diarrhea,belly pain,and bloating. We had him to his gastro doctor yesterday and he wants to check him for Cystic Fibrosis. He has no lung symptoms or anything but they really seem to be leaning towards this disease. Can someone give me some info and let me know if I have to to worry about this or not. Please any info would help.
thank you guys so much for your answers. I just always thought that you had to have breathing problems with this disease. I will check out these websites and keep updated.
Technorati Tags: Belly Pain, Cystic Fibrosis, Diarrhea
